|
Presidential Address
Racial/ethnic
diversity in family caregiving: Implications for clinical geropsychology
William
E. Haley, Ph.D.
Department
of Gerontology, University of South Florida
With
the limited space available, I want briefly to review the work that I
have done with my students and colleagues over the past 10 years focused
on comparisons of White and African-American family caregivers of older
adults with Alzheimer's disease and other dementias. Obviously I will
have to skip over some of the finer points of this work; if you are interested
in reprints, feel free to email me at whaley@chuma1.cas.usf.edu.
I do not have sufficient space to summarize the excellent work of many
other scholars who have done work on African-American caregivers, or more
broadly on race, ethnicity, and caregiving; if you are interested in learning
more about these related areas there are several outstanding reviews (Aranda
& Knight, B.G., 1997; Connell & Gibson, 1997; Janevic & Connell,
2001; Yeo & Gallagher-Thompson, 1996) that have summarized the broader
field.
Some
background on the project.
Besides reviewing our research findings, I want to say a bit about how
I got interested in this topic, and some of the issues that we confronted
in conducting the research. I had gotten interested in family caregiving
and dementia early in my career, and published several articles on caregiving.
My interest in race/ethnicity was inspired by my clinical work. While
I was in the psychology department at the University of Alabama at Birmingham
(UAB), I got interested in this area through my work at the VA Medical
Center. I was spending one day per week seeing patients, consulting with
the geriatric medicine team, and training psychology interns. For the
first time during my training and career, I began to work with increasing
numbers of minority patients and families. In particular, I began to see
African-American caregivers who sometimes had reactions to caregiving
that seemed very different from what I had encountered in White families.
A common experience I encountered was that African-American caregivers
brought their relative in with a complaint of cognitive impairment only
when the patient had severe impairment, but the caregiver described the
memory loss as mild. Another frequent clinical observation was that African-American
caregivers showed very little psychological distress, and willingly took
on caregiving even when the caregivers were more distant relatives (nieces,
grand-daughters), or had been estranged from a parent for many years.
At this point (the late 1980s) there was very little empirical research
on racial/ethnic diversity and caregiving, and no easy prospects for recruiting
significant numbers of minority caregivers. I surveyed Alzheimer's Association
groups in the state of Alabama (which was about 25% African-American)
and found that less than 2% of their members were African-American. In
the Memory Disorders Clinic at UAB, less than 10% of our patients were
African-American, compared to about 50% of the Birmingham population.
Under
the leadership of a neurologist, Dr. Lindy Harrell, UAB successfully competed
for an Alzheimer's Disease Center grant from NIA, and I led an Education
Core that made its primary emphasis the education and recruitment of African-American
patients and families to the UAB Center. We were also funded for a Program
Project grant from NIA, which included a study I directed on comparing
White and African-American caregivers. With these resources wehired some
very dedicated and skilled staff who conducted community outreach at health
fairs, churches, radio stations, and other settings. Dr. Constance West
(at the time an undergraduate, now a Ph.D. clinical psychologist) deserves
special recognition for her ability to connect with the African-American
community, to build trust, and to recruit patients and caregivers to the
UAB Center and our project. I have some very special memories of these
efforts, including being welcomed into several large and historically
important African-American churches where Constance and I addressed the
congregation or worked booths at health fairs. Dr. Lindy Harrell also
deserves enormous credit for making a number of efforts to make the Center
accommodating to African-American patients and families. This included
offering patient evaluations without costs to minority families, and making
clinic staff attuned to flexibility in seeing families at times other
than their precise clinic appointment schedules. After several years of
this effort, more than 20% of the new patients in the AD Center were African-American,
and we were able to recruit a significant sample of African-American patients
and families to our project.
The
UAB Family Caregiver Research Project.
Funded through a Program Project grant, "Alzheimer's Disease: A Multidisciplinary
Approach," with Dr. Harrell and Dr. Mike Wyss as overall PIs, this
study was funded from 1990-95, with additional funding from 1996-2001.
The project continued after my departure to the University of South Florida
in 1995 under the leadership of Dr. Kathy Goode and subsequently Dr. David
Roth. We recruited 123 White caregivers, and 74 African-American families
caring for patients who had similar diagnoses, ages, and levels of impairment.
All patients were seen at the UAB clinic, and thus were very well characterized.
We also recruited samples of 141 White and 77 African-American noncaregivers
who were similar to the caregivers (within race) on demographic variables.
The inclusion of noncaregivers has proven very important as we have some
ability to distinguish which differences found between White and African-American
caregivers are specific to caregiving, versus more general differences
by race/ethnicity. We conducted initial assessments of a comprehensive
set of variables, including patient impairments, and caregiver/noncaregiver
mental and physical health, stressful life events, ways of coping, appraisals,
and social supports. We kept in close touch with all study participants
by phone so that we could track any changes in patient or caregiver status,
such as deaths, moves, or institutionalization. We conducted annual reassessments
of participants, plus special assessments in the event of patient death
or institutionalization. Thus, we have a large, rich, and complex data
set with information on longitudinal stress and coping in White and African-American
caregivers and noncaregivers. I will briefly summarize some of our major
findings.
Major
cross-sectional findings.
One of our key goals was to assess whether White and African-American
caregivers showed differences in indicators of well-being, including psychological,
social, and health variables, in comparison with non-caregivers. We found
(Haley et al., 1995) that White caregivers had significantly higher depression
scores than White noncaregivers or African-American caregivers or noncaregivers.
A similar pattern emerged for measures of life satisfaction. Across a
number of measures of psychological distress, we found no evidence that
African-American caregivers showed greater psychological distress than
noncaregivers, suggesting a resilience to this stress. African-American
caregivers did have worse self-rated health than White caregivers, but
the same pattern of poorer health for African-Americans held for
noncaregivers. This demonstrated the importance of including noncaregiving
comparison groups; without the noncaregivers, we might have misinterpreted
the difference between caregivers as due to a differential health vulnerability
of African-American families to the stress of caregiving. Finally, contrary
to a sizeable qualitative literature, we found that White and African-American
caregivers and noncaregivers did not generally differ on measures of social
support. African-American caregivers also did not have more people helping
them provide care for the relative with dementia.
In another paper focused
on explaining individual differences (Haley et al., 1996) we applied structural
equation modeling to a stress process model of caregiving, with major
variables including caregiving stressors; potential mediators of social
support, appraisal, and coping; and outcomes of caregiver depression and
life satisfaction. While the results are complex, we found that the differences
in depression by race were mediated by caregiver appraisals and coping,
while social support was not a mediator. African-American caregivers rated
caregiving stressors, including managing self-care and behavioral problems,
as less upsetting than did White caregivers, and African-American caregivers
also reported higher self-efficacy in managing these problems. The results
suggested that any resilience in coping with caregiving in African-Americans
might be due to internal coping resources rather than to advantages in
social support. We speculated that African-American caregivers might have
more prior experience with adversity, and greater expectation that caregiving
would occur as a natural transition instead of an unexpected stressor,
compared with White families. We also wrote that caregiving may serve
as more of a disruption to the life course for White families, who often
reported that plans for retirement or travel had been disrupted by the
dementia caregiving responsibilities.
Major longitudinal
findings.
In an initial longitudinal paper (Goode et al., 1998) we examined the
prediction of longitudinal changes in caregiver adaptation using factors
from the stress process model. Caregivers were re-assessed at a one year
follow up, and we computed difference scores assessing changes in patient
impairments, caregiver appraisals, coping, social support, and well-being
(depression, life satisfaction, and health). In summary, we found that,
despite considerable worsening of dementia symptoms in patients over time,
changes in caregiver well-being were not directly related to patient decline;
rather, caregiver well-being was associated with changes in caregiver
appraisals, coping, and social supports, or baseline values of these variables.
In a recently published
paper (Roth et al., 2001) we examined changes in depression, life satisfaction,
and health over a two year interval in White and African-American caregivers
and noncaregivers, using latent growth models. (I should note that Dr.
David Roth of UAB deserves all the credit for our use of complex statistical
models in all of this work, so please send questions about these issues
to him!) Our African-American and White noncaregivers showed stable levels
on all three dependent variables over the two year period, increasing
our confidence that any time effects found were related to caregiving
stress. We found that White caregivers showed stable, high levels of depression
over the two year period, and that African-American caregivers showed
low, stable levels of depression. On life satisfaction, African-American
caregivers showed stable levels, but White caregivers showed worsening
life satisfaction over time. On physical health symptoms, both White and
African-American caregivers showed increased symptoms over time. Thus,
African-American caregivers showed remarkable resilience to worsening
caregiving stressors over time, but this stress appeared to take its toll
on both groups of caregivers in terms of physical health. Since few studies
have looked at racial differences in caregiver health over time, our group
is discussing the possibility of using physiological indicators of health
status in a subsequent longitudinal study of this issue.
Caregiving and
end of life issues.
Alzheimer's disease and other dementias are increasingly recognized as
major causes of death. We have explored potential differences between
White and African-American caregivers in attitudes and reactions to death
in several publications. Dr. Becky Allen-Burge conducted a study using
vignettes about end of life scenarios with the caregiving sample (Allen-Burge
and Haley, 1997) and found that African-American families were significantly
less likely than White families to state that they would withhold certain
types of heroic life-sustaining treatments for a relative with dementia.
In a subsequent study (Owen et al., in press) of caregivers whose relative
died during the project, we found that African-American caregivers were
actually less likely than White caregivers to have made a decision to
withhold life-sustaining medical treatment prior to the patient's death.
We also found racial differences in certain emotional aspects of grief
and reaction to death; African-American caregivers rated feelings of relief
lower, and feelings of loss higher, than White caregivers. African-American
caregivers were also lower on several indicators of anticipatory grieving.
We are completing
an additional manuscript examining long-term psychological, social, and
health consequences of the death of the dementia patient. Our preliminary
analyses suggest that both White and African-American caregivers show
similar responses, including improvements in social engagement and life
satisfaction, but depression that remains quite high in White caregivers
even at a year after the death.
Implications for
intervention.
One of the goals of conducting naturalistic studies of stress and coping
is to provide information useful for clinical interventions. Fortunately,
research on race, ethnicity, and caregiving has proven useful in stimulating
intervention research focused on evaluation of whether caregiver interventions
are useful for diverse caregivers. The Resources for Enhancing Alzheimer
Caregivers Health (REACH) project, funded by NIA and NINR since 1995,
includes six geographically diverse sites and a Coordinating Center focused
on evaluating caregiver interventions for White, African-American, and
Hispanic caregivers. I have been involved in REACH through Dr. Lou Burgio,
PI of the Alabama site, and have worked with Dr. Dolores Gallagher-Thompson
to co-chair the REACH Ethnicity Work Group. We have written several papers
outlining practical suggestions for working with diverse caregivers (Gallagher-Thompson
et al., 2000, 2001). In summary, caregiver interventions should be designed
with an eye toward considering cultural issues; printed materials and
examples used should include both diverse caregivers and reflect situations
that may be encountered by minority families. Interventionists should
understand cultural issues and may need to accommodate to differing communication
styles and norms about promptness or family roles. Particularly with Hispanic
caregivers, great care should be given to proper and sensitive translation
and use of language.
Final comments.
Because the recruitment of racial/ethnic minority older adults for research
studies, or within many clinical settings, requires extraordinary effort
and thoughtful attention to a myriad of details, most research in clinical
geropsychology has focused on White older adults. Increased attention
to racial/ethnic diversity is not only a necessity occasioned by pressures
from NIH and increased demographic growth of minority elders; it can be
an interesting and inspiring focus. For a close-up view of caregiving
through the eyes of an African-American caregiver, I urge you to consider
reading Lela Knox Shanks' 1999 book, "Your name is Hughes Hannibal
Shanks." This is a joyful and illuminating telling of Ms. Shanks'
journey through caregiving, from its initial phases through bereavement.
I will not give away the story, but guarantee that after reading it you
will have an increased appreciation of how prior experience with adversity,
optimism, faith, and determination can help make the potentially overwhelming
stress of dementia caregiving bearable and even an opportunity for growth
and satisfaction. Of particular note is that she reports receiving more
hope and help from her psychologist than from other health care providers
she encountered during this long caregiving career. Geropsychology has
a great deal to offer to diverse older adults and their families, and
we can learn much from greater attention to diversity issues that will
make us more effective clinicians.
References
Allen-Burge, R., &
Haley, W.E. (1997). Individual differences and surrogate medical decisions:
Differing preferences for life sustaining treatments. Aging and Mental
Health, 1, 121-131.
Aranda, M.P. &
Knight, B.G. (1997). The influence of ethnicity and culture on the caregiver
stress and coping process: A sociocultural review and analysis. The Gerontologist,
37, 342-354.
Connell, C.M. &
Gibson, G.D. (1997). Racial, ethnic, and cultural differences in dementia
caregiving: Review and analysis. The Gerontologist, 37, 355-364.
Gallagher-Thompson,
D., Arean, P., Menendez, A., Takagi, K., Haley, W.E., Arguelles, T., Rubert,
M., Loewenstein,D.,
and Szapocznik, J. (2000). Development and implementation of intervention
strategies for culturally diverse caregiving populations. In R. Schulz
(Ed.), Handbook on dementia caregiving: Evidence-based interventions for
family caregivers. (pp. 151-186). New York: Springer Publishing Company.
Gallagher-Thompson,
D., Haley, W.E., Guy, D., Rupert, M., Arguellas, T., Tennstedt, S., &
Ory, M. (2001) Tailoring psychological interventions for ethnically diverse
dementia caregivers. Under editorial review.
Goode, K.T., Haley,
W.E., Roth, D.L., & Ford, G.R. (1998). Predicting longitudinal changes
in caregiver physical and mental health: A stress process model. Health
Psychology, 17, 190-198.
Haley, W.E., Roth,
D.L., Coleton, M.I., Ford, G.R., West, C.A.C., Collins, R.P., & Isobe,
T.L. (1996). Appraisal, coping, and social support as mediators of well-being
in Black and White family caregivers of patients with Alzheimer's disease.
Journal of Consulting and Clinical Psychology, 64, 121-129.
Haley, W.E., West,
C.A.C., Wadley, V.G., Ford, G.R., White, F.A., Barrett, J.J., Harrell,
L.E., & Roth, D.L. (1995). Psychological, social, and health impact
of caregiving: A comparison of Black and White dementia family caregivers
and noncaregivers. Psychology and Aging, 10, 540-552.
Haley, W., Han, B.,
& Henderson, J. (1998). Aging and ethnicity: Issues for clinical practice.
Journal of Clinical Psychology in Medical Settings, 5, 393-409.
Janevic, M.R., &
Connell, C.M. (2001). Racial, ethnic, and cultural differences in the
dementia caregiving experience: Recent findings. The Gerontologist, 41,
334-347.
Owen, J.E., Goode,
K.T., & Haley, W.E. (in press). End of life care and reactions to
death in African-American and White family caregivers of relatives with
Alzheimer's disease. Omega.
Roth, D.L., Haley,
W.E., Owen, J.E., Clay, O.J., & Goode, K.T. (2001). Latent growth
models of the longitudinal effects of dementia caregiving: A comparison
of African-American and White family caregivers. Psychology and Aging,
16, 427-436.
Shanks, L.K. (1999).
Your name is Hughes Hannibal Shanks. New York: Penguin Books.
Yeo, G. & Gallagher-Thompson, D. (Eds.) (1996). Ethnicity and the
dementias. Washington, D.C.: Taylor & Francis.
Division 12/Section II Officer Election Results.
Submitted
By: Greg Hinrichsen, PhD.
**President-Elect
(2002): Victor Molinari, Ph.D.
**Treasurer
(2002-2004): Margaret P. Norris, Ph.D.
**By-Laws
Amendment to make Public Policy Committee a Standing
Committee: Approved
Public Policy Committee: Update On Recent Developments
Margaret
P. Norris, Ph.D., Public Policy Committee Chair
As Chair
of the Public Policy Committee, I would like to update the Section II
membership on many recent developments:
** Now headed by Thomas
Scully, HCFA has been renamed Centers for Medicare and Medicaid Services
(CMMS).
** APA has written
a response to CMMS on the OIG report "Medicare Payments for Psychiatric
Services in Nursing Homes." Many thanks to Diane Pedulla for doing
the leg work on this response! I have a copy of this letter if you are
interested in seeing it.
**AARP announced that
they no longer would be able to host the Coalition on Mental Health and
Aging meetings. Fortunately, Debby DiGilio, Aging Issues Officer of CONA,
offered the services of APA to host these meetings. Many thanks to Debby
for showing this leadership and we look forward to a close and fresh collaboration
with the Coalition!
**CMMS announced the
formation of "health-sector workgroups," which will meet to
improve communications between CMMS and providers. APA Practice Directorate
members are expected to attend the first meeting, which has recently been
re-scheduled to October 26th. We are hopeful this forum will provide an
opportunity for the psychology profession to have a greater voice in CMMS
regulatory matters.
**An announcement
is expected in November on the fees that will be paid for the new health
and behavior CPT procedure codes.
**There is good news
on the progress of the Mental Health Equitable Treatment Act of 2001.
The Senate Health, Education, Labor, and Pensions Committee approved it
by a 21-0 vote! This bill would replace the 1996 federal parity law, which
expires the end of September. This current law prohibits discriminatory
annual and lifetime dollar limits for treatments of mental illness. The
current updated bill would go further in abating mental illness discrimination
by prohibiting caps on the number of treatment sessions and barring higher
deductibles or co-payments for mental health care. Coverage for mental
health services and medical services would have to be equal. These proposed
changes would not apply to treatment for chemical dependency or substance
abuse. It would also not apply to employers who do not offer coverage
for mental health care or employers who have 25 or fewer employees. (An
interesting question is whether it would apply to Medicare beneficiaries!)
Despite strong support from the Senate as indicated by 50 Senate co-sponsors
for the bill, it will face some opposition and attempts to water down
the impact as it makes its way through Congress. The costs of the bill
are estimated to be minimal, 1% or $1.32 per enrollee per month. However,
Republican Judd Gregg (New Hampshire) plans to propose an amendment that
would exempt employers if the benefits would increase costs by more than
1%. Republican Bill Frist (Tennessee) would like to limit parity to "biologically
based illnesses." Nevertheless, the committee's unanimous passing
of this bill bodes well for eliminating some of the existing discrimination
policies that still exist for insurance coverage of mental health treatments.
The Public Policy Committee will continue to keep you apprised of this
and other bills and alert members to letter-writing campaigns.
**Learn if your Medicare
carrier is revising LMRPs pertaining to mental health coverage. On the
web, go to www.draftlmrp.net, click on
"draft policies" and highlight your carrier.
**Finally, we want
to welcome Brian Kaskie as a new member of the Public Policy Committee.
Brian is an Assistant Professor at the University of Iowa and comes to
us with a strong background and research interest in public policy matters.
With regrets, Lynn Northrup has decided she must resign from the committee
in order to prioritize her responsibilities. Best wishes, Lynn, for you
and your new baby!
Division
12, Section II Student Research Award Winner:
Sherry
A. Beaudreau, M.A.
Age
Differences in Storytelling: Inhibitory Deficits versus Pragmatic Change
The
current debate in the cognitive aging literature is whether age differences
in language production reflect inhibitory deficits or, alternatively,
if older adults select a more verbose style of speech when interacting
with others with the goal of increasing social interaction. Hasher and
Zacks (1988) proposed a general underlying age-associated deficit in the
ability to inhibit irrelevant information, especially holding focus during
conversation, the theory of inhibitory deficits. Burke (1997), however,
proposed the pragmatic change hypothesis suggesting that verbosity is
a practical skill used by older speakers to elicit increased social interaction.
The purpose of this study was to determine if older adults use a different
strategy than younger adults in some conditions but not in others during
storytelling as predicted by the theory of pragmatic change. Specifically,
older adults should tell lengthier stories when given the opportunity
to do so. Further, these stories should be judged to be of superior quality.
Old and young
participants were recruited from the volunteer research pool at Washington
University. Three pictures and three personally relevant stories of negative,
neutral, and positive valence were used as storytelling stimuli. All participants
gave informed consent and were randomly assigned to either a terse (2
min) or a long (10 min) condition. Forty-eight young and 48 old participants
were asked to "Tell about...You will have 2 min (10 min) to tell
your story". A linguistic program (SLIWC second-version, 1999) was
used to calculate the number of words and to analyze the percentage of
words in the following categories: affective, cognitive, sensory and perceptual
processes, social, first person, and fillers. Then, 5 older and 5 younger
different participants rated the narratives in terms of overall quality,
off-topic, interest, clarity and richness in detail. Each of the five
ratings was on a 5-point Likert scale ranging from 1 (not at all) to 5
(very much so).
We found no
age differences in total words, F (1, 93) = 0.84, p > .05; or the Age
x Length interaction, F (1, 93) = 0.07, p > .05. Significant main effects
for storyteller age were found for sensory and perceptual words, F (1,
92) = 10.55, p < .01, social words, F (1, 92) = 4.08, p < .05, first
person words, F (1, 92) = 5.24, p < .05, and filler words, F (1, 92)
= 53.64, p < .001. Specifically, older adults used more sensory, social,
and first person words. Young adults used more fillers.
Although significant
interactions with age were detected on the dependent variables of percentage
of social, filler, and first person words, none of these simple effects
tests were significant (p > .05). There were no age differences in
any of the ratings of the stories from the long condition. The quality
of the stories told by younger narrators in the short condition were rated
as significantly better than the stories told by the older adults (2.62
vs.2.53). These stories were also judged to be significantly more interesting
(2.52 vs. 2.32) and richer in detail (2.56 vs. 2.43). The correlations
between the subjective ratings of the stories and the types of words (e.g.,
affective, cognitive) used in the story were very modest. They ranged
from -.20 to .17. Similarly, the correlations among the types of words
used were minimal ranging from -.19 to .27.
The pattern
of results does not support the theory of pragmatic change. Older adults
did not use a greater number of total words or a greater percentage of
words in meaningful categories compared with young adults in the long
condition. Furthermore, older adults were not rated at telling stories
of better overall quality, or that were more off-topic, interesting, clear,
or rich in detail than those told by young adults in the long condition.
These results also do not support the theory of inhibitory deficits. Old
adults were similar to young adults in total number of words and on the
five subjective ratings (overall quality, interest). General slowing may
explain why young adults were rated as telling stories of better quality,
interest and detail than old adults in the short condition. Because we
found that, overall, old and young storytellers were commensurate with
regard to the quality of stories based on objective and subjective measures,
it is possible that off-topic verbosity is a sign of pathological and
not normal aging.
A Powell Lawton Memorial
Gregory
A. Hinrichsen, Ph.D., Past Section II President
A
memorial
service for Powell Lawton was held on March 15, 2001 at the Abington Friends
Meeting House. The service, one of two held in the Philadelphia area,
was organized by his friends and colleagues from the Philadelphia Geriatric
Center. Attendees sat in straight back benches in this sparsely decorated
place where Quakers have met for over 100 years. In the tradition of the
Society of Friends, attendees were asked to share their thoughts about
Powell. People sat quietly in their pews until someone spoke. Following
a recollection there were a few moments or a few minutes of silence. Then
another would stand, share thoughts, feelings, stories. The simplicity
of the service seemed so appropriate for the direct, unpretentious manner
of Powell Lawton.
The substance
of the remarks by those of us who knew him mirrored comments that have
been made on listserves, in the Division 12, Section II and Division 20
newsletters, and in informal conversations. Powell was a person of enormous
intellectual and creative talent that emanated from a person who consistently
evidenced personal modesty and deep respect for others. A note from former
Philadelphia Geriatric Center colleague, Elaine Brody, was read at the
service. It said that in the Jewish tradition it is believed that despite
so much evil in the world, God does not destroy it because of the presence
of a handful of righteous people. Elaine Brody said that Powell was among
that handful.
Powell's
wife Fay shared a powerful and loving memory of her husband, the life
long Quaker. She said that as he was dying he cried out "take me
to the sacred place." The memorial service closed simply as the conveners
clasped each other's hands in friendship in a way that reminded me how
so many people felt that their hands had been clasped in friendship by
Powell Lawton.
The
World Trade Center Attack: A View From New York City
Gregory
A. Hinrichsen, Ph.D., Past Section II President
The
attacks on the World Trade Center and Pentagon have deeply shocked Americans
everywhere. For residents of New York the destruction of the World Trade
Center is a deeply personal, painfully poignant loss. As a resident of
lower Manhattan, I stood on the street with my neighbors watching the
twin towers burn. And then they were gone. The towers were such a prominent
part of the New York City metropolitan skyline that many, many people
were first hand witnesses to this overwhelming sight. An older patient
told me that he watched the towers being built from his living room window
in Brooklyn in the early 1970's and then watched them collapse through
the same window. As I write this article, smoke continues to rise from
the hole in the skyline that was once the Trade Center.
The social
and psychological impact of these events on New York and the nation will
be revealed in the coming months and years. The North Shore-Long Island
Jewish Health System, of which my employer, Hillside Hospital, is a part,
responded immediately. On Tuesday of the attack, we prepared to care for
the wounded. As we now know, few survived the attack. A crisis hotline
was established to provide support, information, and resources. Support
groups for individuals affected by the attack were established at Hillside
Hospital. Our psychology staff has played a prominent role in these efforts.
Hillside Hospital staff volunteered to provide ongoing mental health services
at a support center that was established by the Port Authority near Kennedy
Airport. The Port Authority owned and had a large number of employees
in the World Trade Center. Hospital staff members have also volunteered
to provide mental health services at the New York City Family Assistance
Center located on the Hudson River in a converted pier.
I have
met with survivors of the attack and families of missing persons who now
we know are likely dead. Survivors tell of the remarkably orderly evacuation
of the Trade Center and how they helped each other make the long trip
down several thousand stairs while firefighters resolutely made their
way up the same stairs. Some survivors were in the Trade Center during
the 1993 bombing and contended with the practical and emotional aftermath
of that trauma. One woman with whom I spoke said she had PTSD symptoms
for several years after the 1993 bombing. The September 11 attack was
everything that she had feared. Survivors spoke of the personal items
that they left behind: a favorite pair of shoes, a picture of their family,
a wedding album. They seemed surprised by their concern about these objects
which are small but tangible representations of the enormity of a loss
that cannot currently be fathomed. They spoke of friends at the Trade
Center who survived and those who did not. They wondered whether people
they casually knew who also worked at the Trade Center were still alive
-- the guy who ran the newsstand, the woman who served food at the cafeteria,
or the janitor. Family members of the missing shifted between mental scenarios
in which their loved one was still alive ("Perhaps he was in the
basement and is alive in an air pocket," "Perhaps she is in
a coma in the hospital,") to flashes of realization that none of
the missing likely survived. When entertaining the plausibility that the
loved one was dead, they bargained for a fragment of a body that could
be linked by DNA analysis to the missing. For some, the experience of
the tragic events of the Trade Center was sharpened by problems that predated
the attack - a conflicted relationship with the missing person, a not
so loving and supportive family, financial problems, a pending divorce.
Needless
to say, the emotional toll on those of us who have spoken with survivors
and with families has been considerable. I spoke with a Muslim man clutching
a copy of the Koran who wept while he told me he simply couldn't tell
his wife that their son was dead. When he left the pain and shock on my
face was so visible that one of the clergy passing by my work station
at the Family Assistance Center stopped and asked me if I was alright.
I wasn't and I needed to talk.
While New York City has always had a reputation as a hard-edged, driven,
impatient place, it has changed in the last ten days. People sit quietly
on the subway, walk more slowly, act more politely, and look at each other.
New Yorkers still weep as they stand looking at the myriad pictures of
the missing that cover bus stop shelters, lamp posts, and walls. And as
always, my psychology colleagues have volunteered their time, their skills,
and their hearts to help those in need. God bless them and God bless the
people of our country.
New York
City, September 22, 2001
The
Student Voice
Merla Arnold, R.N., Ph.D.
We are just coming back from the San Francisco
2001 APA conference. It was a great time of learning, connecting and reconnecting.
Sherry Beaudreau, our most recent winner of the Section II Student Research
Award, was appointed Student Representative. She is already hard at work
to meet the needs of the student membership. Welcome Sherry!
We
would like to hear about and announce the accomplishments of other 12/2
student members. Let us know what you've been up to. While many are beginning
a new academic year, it may be that thinking "what next" is
far from your minds. Maybe not. Either way, it is not too soon to consider
the following recommendations of one former 12/2 student member:
Seeking
a Post-Doc in Geropsychology
Frederick J. Kier, Ph.D.
As
a former geropsychology post doctoral fellow, and a current staff member
at a site that offers post-doctoral fellowships in geropsychology, I am
often asked by interns and graduate students for advice about applying
for post-docs, as well as how to make the most of one's fellowship experience.
I will very briefly touch upon what I feel are the most critical points.
Many
of the things one can do to improve the chances of getting a post-doc
are often done years before the application. If you are planning a career
in geropsychology, plan for a post-doc and plan far ahead of time. Expand
your experiences in geropsychology as you move through your graduate program,
including practicum, research, and course work. With all else being equal,
an applicant whose only experience in working with the older adult is
one internship rotation may be at a disadvantage when competing with another
postdoctoral applicant with a history of experiences in the field. Another
plus could be your dissertation, if it focuses on a geropsychological
topic. The recommendation to begin early gaining experience with the older
adult rests partly on the notion that many fellowship sites use this history
to assess the extent of your interest in working with older adults and
to gauge whether or not you might make a career out of it.
This
isn't to say internship is not important. Picking an internship site that
either has a geropsychology specialization, a large number of rotations
working with older adults, or a site that has geropsychology post-docs
will help you when applying for a post-doc. These sites will likely have
more intensive experiences in geropsychology and have faculty members
knowledgeable about the field and those in it. These faculty members are
also more likely to know more about post-doc opportunities and the application
process. Another thing to keep in mind is that some sites tend to take
their own interns for the post-doc positions. While nothing is guaranteed,
if a site has a history of taking their own interns, it may be worth looking
into applying there for internship.
My next
recommendation is to complete your dissertation. The funding policies
of many institutions require that the person in the position have their
degree. If the person does not, then the fellowship must be awarded to
another candidate. Because of this, applicants who do have their dissertations
defended, or nearing completion, are at an advantage in the application
process over those who are farther behind.
It's
important to make the most of the post-doc experience, for it's your last
chance to get full time experience and training. Talk with the director
of training and discuss your goals for the post-doc year. There are two
questions that you should consider when formulating these goals. First,
what kinds of experiences do you need for the career in geropsychology
you are planning for yourself (i.e., psychotherapy, assessment, research,
teaching)? What setting do you want to work in? Second, are there any
deficits that need to be remedied or areas that require more improvement
for you to have the skills you need for the career you want? For example,
have you had (or had enough) experience in group psychotherapy, or neuropsychological
testing, or research? The post-doc year is the time to fix, fine tune,
or further bolster your training in the areas that are critical to your
future career.
Another
person to speak with to maximize your post-doc experience is the current
fellow. They can often give you the "inside scoop" on what the
post-doc is actually like and can alert you to potential opportunities
and/or pitfalls. They can also be a good resource if you are moving to
a new area for your post-doc, giving you information about affordable
housing and good areas to live in. I would urge you to ask others who
have recently graduated from fellowships for their advice as well. Everyone's
experience is different, and my advice certainly will not apply to all.
I would welcome any questions from students regarding post-doctoral fellowships
in geropsychology. Good luck!
¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨
Frederick J. Kier, Ph.D. is a staff Psychologist at the VA Pittsburgh
Healthcare System. He was a student member of 12/2 and offered to contribute
to this column.
¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨
We would like to have your suggestions for a future Student Voice column.
Please
contact 12/2 Student Representative, Merla Arnold, R.N., Ph.D., at: ma159@columbia.edu.
Posting
of Internships and Postdoctoral Training in Geropsychology
Merla Arnold, R.N., Ph.D.
Many are beginning
to think about applying for Internships and obtaining a Post Doctoral
experience. To facilitate your search, APA's Division 12, Section II Clinical
Geropsychology website posts training opportunities for students interested
in clinical geropsychology. Included in that list are clinical psychology
internships and clinically focused postdoctoral fellowship opportunities.
¨To find this
listing go to: http://bama.ua.edu/~appgero/apa12_2/training/trainmain.html
Please feel free to
contact me should you have any questions or comments:
Merla Arnold, R.N.,
Ph.D.
12/2 Student Representative
Geropsychology Fellow, Hillside Hospital, LIJMC
ma159@columbia.edu
Profile
On: Claren Sheck-Boehler, Ph.D.
Career
Opportunities in Long-Term Care
I
am an early-career clinical psychologist providing psychology services
at three extended care facilities in the Toledo, Ohio area. I am also
the mother of three daughters:13 months, 4 years, and 7 years. I received
my Ph.D. from the University of Georgia in 1994, when I was 8 months pregnant.
Like many graduates, I was faced with the challenge of starting my family
and career at the same time. Establishing my career in long-term care
has allowed me to do both.
My
affinity for the elderly began in childhood. I was fortunate to spend
time with older relatives and remember fondly my 80-year-old Aunt Alice
living with my family for a year. During my training at the University
of Georgia I specialized in behavioral medicine and developed an interest
in gerontology. I was fortunate to work with Bill Haley and Dan Marsen
during my internship at the University of Alabama at Birmingham. They
encouraged my interest in clinical work and research with the elderly.
While in Birmingham, I received training in inpatient and outpatient geriatric
settings as well as geriatric neuropsychology and rehabilitation psychology.
By the time I graduated, I knew I wanted to pursue a career in geropsychology.
Originally
I planned to start my career in a hospital setting where I would have
access to clinical work, research, and teaching opportunities. However,
I found I wanted to spend as much time as possible with my baby and decided
traditional full-time postdoctoral training was not for me. I found a
part-time position with a company providing rehabilitation and psychological
services to area long-term care facilities. This first job provided me
the opportunity to work part time in a medical setting, become familiar
with clinical and payment issues unique to long-term care, and complete
my postdoctorate requirements.
In
1999, due to changes in Medicare funding for psychology and rehabilitation
services, the company I worked for discontinued its psychology services
program. I found myself a newly licensed psychologist with two small children
going into business for myself. I continued to want to work part time
in order to enjoy my children's early years. To make the prospect financially
feasible I decided to do my own billing and was able to attend workshops
and hire a consultant to train me in this area. Today I am the consulting
psychologist at two local extended-care facilities and share services
at a third with two colleagues. I spend two days working outside the home
and another half day a week doing billing, etc, from my home office. Being
self-employed has given me greater flexibility to accommodate child sick
days and extracurricular activities, has increased my revenue, and has
simplified my pursuit of research and teaching experiences in these settings.
Regardless
of whether you work for yourself or a company, employment in long-term
care provides opportunities for professional growth both in and beyond
clinical work. Long-term care settings offer the early-career psychologist
exposure to a wide variety of presenting problems. Pain management, rehabilitation
issues, neuropsychological screening and assessment, and grief work are
frequent referral issues as well as the full range of inpatient and outpatient
psychological disorders. Collaboration with medical, rehabilitation, pharmacology,
and social service staff allows opportunity to give and receive education
from other disciplines and improve patient care. There is a great need
for research addressing concerns of the elderly in long-term care. In
my experience, facilities are supportive of research and residents are
enthusiastic about participating. Collaborating with colleagues at university
and medical settings is one way to address funding and practical difficulties
of doing independent research. Recently one of my facilities has decided
to begin a facility-wide pain-management program, and I am assisting with
development of a coordinating research program. Teaching opportunities
are also numerous. I have pursued this avenue by providing frequent informal
education to staff and families regarding treatment issues. In addition,
I conduct clinically relevant facility in-services and educational presentations
on geropsychology topics to local aging organizations.
Professional
isolation can be a problem in long-term care settings. As an early-career
psychologist, I find it is helpful to have the support and guidance of
colleagues. I have sought out other long-term care practitioners in my
local area. We support each other with periodic meetings to review clinical,
ethical, billing, and business issues. We also provide coverage for each
other during vacations and try to attend continuing education training
together. In addition, keeping up with gerontology literature and professional
organizations has helped me maintain a connection with the larger scientific
community. Besides APA organizations geared toward psychologists (APA
Division 12, Section II; Division 20), there are national multidisciplinary
organizations (e.g., Gerontological Society of America, American Geriatric
Society) and Psychologists in Long-term Care that provide contact with
other geropsychologists as well as educational opportunities.
There
are unique clinical challenges in working with this population. Restrictions
of clinical services by Medicare such as session limits and lack of funding
for treating dementia-related behavior problems are frustrating and necessitate
continued political pressure. Another difficulty in my local area is finding
psychiatrists who are willing to come to facilities to provide medication
management. Allowing psychologists to pursue prescription privileges is
one solution to this dilemma. However, because of the complexity of medication
management for the elderly, an intensive, high-quality program would be
needed to train psychologists to assume this responsibility.
Working
in long-term care has been a challenging and exciting place to begin my
career. Opportunities to expand skills in clinical, research, and teaching
areas are plentiful. This setting has the added benefit of schedule flexibility
that has allowed me to enjoy parenting while pursuing my career.
¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨¨
Feel free to contact Claren Sheck-Boehler, at 419-866-0138 or e-mail her
at Boehlcj@accesstoledo.com
with your comments, questions, or interests in long-term care issues.
Reminder!
Section II Board meeting at GSA:
Saturday, November 17, 8-10:15 AM
Private Dining Room #16, Palmer House
|
Clinical Geropsychology News
Newsletter of Section II, Division 12, APA
Michelle Gagnon, Psy.D., Editor
Nova Southeastern University's Geriatric Institute
4800 North State Road 7, Suite #F102
Lauderhill Lakes, FL 33319
|